PARENTING CHALLENGES OF AUTISM SPECTRUM: PARENTS' PERCEPTIONS IN EAST JAVA

Penelitian ini bertujuan untuk menganalisis tantangan pengasuhan anak spektrum austism. Jenis penelitian yaitu survei dengan desain cross sectional. Teknik pengumpulan data melalui pengisian kuesioner di Google Form yang disebarkan melalui Whatsapp. Jumlah responden terdiri dari 61 orang tua anak spektrum autism di Jawa Timur.  Selanjutnya data penelitian dianalisis secara univariat menggunakan rumus interval persentase dengan korelasi Spearman. Uji validitas dan reliabilitas instrumen dilakukan dengan menggunakan analisis statistik SPSS Versi 24 menggunakan korelasi Spearman.  Uji instrumen diperoleh skor 0,329 dinyatakan valid dan nilai reliabilitas 0,823 > 0,70 dinyatakan reliabel. Perolehan hasil analisis data menunjukkan sebagian besar orang tua mendapatkan informasi tentang pengasuhan anak spektrum autism dari profesional dengan skor (89,18%), sebagian orang tua sudah mengimplementasikan  pengasuhan anak spektrum autism sendiri dengan skor (66,23%), sebagian besar orang tua menunjukkan kesulitan dalam melatih kemandirian anak spektrum autism dengan skor (90,49%), sebagian besar orang tua mendapati tantangan fasilitas layanan pendidikan yang dirasa masih kurang dengan skor (82,30%) dan sebagian orang tua mengalami gangguan tidur diakibatkan pengasuhan anak spektrum autism dengan skor (65,57%). Interpretasi hasil penelitian signifikan untuk persepsi orang tua pada tantangan pengasuhan anak spektrum autism. 

This study aims to analyze the challenges of parenting a child with autism spectrum. This type of research is a survey with a cross sectional design. The technique of collecting data is through filling out a questionnaire on Google Form which is distributed via Whatsapp. The number of respondents consisted of 61 parents of children on the autism spectrum in East Java. Furthermore, the research data were analyzed univariately using the percentage interval formula with Spearman correlation. Test the validity and reliability of the instrument was carried out using statistical analysis SPSS Version 24 using Spearman correlation. The instrument test obtained a score of 0.329 which was declared valid and a reliability value of 0.823 > 0.70 was declared reliable. The results of data analysis showed that most parents received information about autism spectrum child care from professionals with a score (89.18%), some parents had implemented their own autism spectrum parenting with a score of (66.23%), most of the parents showed difficulty in training the independence of autism spectrum children with a score (90.49%), most parents found the challenges of educational service facilities that were still lacking with a score (82.30%) and some parents experienced sleep disorders due to the care of autism spectrum children with a score (65.57%). The interpretation of the results of the study was significant for parents' perceptions of the challenges of parenting autism spectrum children.